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Precision Cancer Survivorship Cohort

  • Status
    Accepting Candidates
  • Age
    18 Years - N/A
  • Sexes
    All
  • Healthy Volunteers

Description

People diagnosed with cancer frequently experience long-term health conditions earlier in life when compared to their non-cancer peers; many of these long-term conditions are typically seen among those who are significantly older in age. This study will collect information about how participants' age and their access to health care from two surveys over two years, as well as a one-time sample of saliva, to analyze a biologic marker of aging. We will use this information to understand how cancer survivors age and access health care.

The study consists of a survey now and in one year and an optional submission of a saliva sample for analysis. The survey asks about participants' cancer diagnosis and treatment, wellbeing, concerns related to reproductive health, quality of life, and experience with care. No sensitive information will be collected. Those who submit saliva specimens will have their telomere length measured. Telomeres are located at the end of your DNA and protect your chromosomes, similar to plastic tips at the end of shoelaces. Telomere length can be used to measure the aging of our cells.

Details

Protocol number IRB202100342

Eligibility

Inclusion

Age ≥ 18 years Diagnosed with any invasive malignancy (as defined by the North American Association of Central Cancer Registries)

Exclusion

Non-participation in the OneFlorida Data Trust Age < 18 years Diagnosis with a non-invasive or non-reportable cancer

Participate in a study

Here are some general steps to consider when participating in a research study:

  1. Step
    1

    Contact the research team

    Call or email the research team listed within the specific clinical trial or study to let them know that you're interested. A member of the research team, such as the researcher or study coordinator, will be available to tell you more about the study and to answer any questions or concerns you may have.

    Primary contact

  2. Step
    2

    Get screened to confirm eligibility

    You may be asked to take part in prescreening to make sure you are eligible for a study. The prescreening process ensures it is safe for you to participate. During the prescreening process, you will be asked some questions and you may also be asked to schedule tests or procedures to confirm your eligibility.

  3. Step
    3

    Provide your consent to participate

    If you are eligible and want to join the clinical trial or study, a member of the research team will ask for your consent to participate. To give consent, you will be asked to read and sign a consent form for the study. This consent form explains the study's purpose, procedures, risks, benefits and provides other important information, such as the study team's contact information.

  4. Step
    4

    Participate

    If you decide to participate in a clinical trial or study, the research team will keep you informed of the study requirements and what you will need to do to throughout the study. For some trials or studies, your health care provider may work with the research team to ensure there are no conflicts with other medications or treatments.